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Happy 17th RE-birthday, Nielson Family
2 months ago
Daily Happenings, Quotable Offspring, Journal Worthy Moments... Love, Laughter and Life Abound.
After a wonderful Christmas, Mom, Carly and I got to head up to Salt Lake/Park City together. Just the 3 of us! We had a very nice time shopping, eating yummy food and hanging out together. Carly flew home first and Mom surprised me with a hair appointment to a fantastically nice hair salon-- which I so needed and then graced me with much needed time to sleep in.

Happy 29th Birthday, Car Bear! 29 presents (Mom's good idea), a yummy dinner of crab legs and apple pie a la mode with a candle on top.
~ I am grateful for my amazing kids and their tolerance for their Mother wanting to get just one shot of us all together for Christmas cards. I have the most gorgeous kids and it is time to show them off!





~ I am grateful for Lexis' patience in this past few years as she has had to have her braces on and on and on. She is now counting down in days until they come off.
~ I am grateful for the adoration that Michael has for me as his Mom. While he does not sleep often, when he does he is a true snuggler. He loves to sleep lying on my shoulder or holding my hand or with one arm thrown atop me. He likes to know I am there and I am thankful for his love.
Someone's wiped out! After pre-school, Michael just hangs out, waiting to be picked up and snuggled by Mama---his only want in life. If I would sit next to him all day and all night he would be content. His No No's are NO longer working. He has figured that if he pushes himself hard enough he can still get to his head but will make red marks on his arms from the force. Two for the price of one. At school they have been using his helmet more often. But after the "Emergency Behavioral Meeting" on Friday it looks as if we may have more options to put forward. A plan was made up by myself and his teachers/therapists alike outlining a better plan for his time at school. Also, a USDB person is planning to certify myself and his teachers/therapists in what is called the Mand program. This is a behavior program which will also allow us to learn the most effective way of restraining Michael when he is trying to hurt himself and others. He has come home from school quite beat up in the past week which has had me very concerned. He is also hurting me much more severely than before. His PT, Jay, was saying that it is not surprising that Michael is stronger than me at this point since he is basically 'working out' every muscle in his body non stop through out a day. His concern was for the future as well. Meaning as Michael grows older and bigger, what then? I am looking forward to the opportunity of learning a new program and hopefully that this will decrease his aggressive behaviour dramatically. The consensus at the meeting? Michael is smart, very smart. Now that we can work with.
It's my birthday.. not super excited to be one year older. Lexis had me convinced I was turning "35!" and it was surprising how upsetting I found that to be. Today was a simple day and I was able to spend it with the kids. Lexis decorated my car with hundreds of post-it notes that had all kinds of sweet birthday messages written on them. Grace and Noah helped by filling the inside of the car with balloons plus a giant Diet Coke and equally large box of Hot Tamales on my seat. Two of my favorite things! I made Jambalaya cause I love it even though the kids don't like it as much. They were so very loving and kind all day! I am a very luck 34 year old!


Michael went to the dentist today. He had 4 cavities! A lot better than I was thinking after 4 years of drinking a bottle non-stop. The Dr was really great. Very consciousness of his needs. Michael sat straddling my lap and then the Dr laid Michael's head back onto his own lap to check out his teeth. He fought with the 'things' in his mouth but overall did well. His Dr took only minutes to check it out. We have scheduled for an appointment at the Surgical Center in Salt Lake next week to have his teeth taken care of. I am quite nervous about Michael going under. I wonder if they will give him the "regular dose" for a child his size and he'll end up waking up in fits a few minutes in. He has such an amazingly strong tolerance to medication. This will have to be something I make clear when we go in. Having his teeth fixed can only help in his behaviors. Taking care of that pain that must be bothering him with cavities. I'm crossing fingers.
Living in Utah you can imagine the controversy in my personal choice with supporting Barack Obama. I have had some interesting conversations; some with friends, neighbors, Mom, Becky, Carly, verl even my kids. This year's elections have inspired me in many ways and one of those is definitely the conversation it is promoting in many. 


I must admit that on some of these days when sleep is a distant memory, I daydream myself into beautiful places, quoting poetry and enjoying the sounds of the earth's silence.
Lexis is doing really, really GREAT in Volleyball! She is playing for the Sophmore, JV AND Varisty teams at TimpView and I am extremely proud! She has been working very hard and really putting out a lot of effort into the game, her performance and as the member of a team.

Michael has been "miserable" at school! He came home all beat up and then was worked up all night long. It seems he is demanding that the teacher takes him outside for a walk or to swing and if he is not doing that he is throwing HUGE fits. I am obviously concerned about his manipulations and control issues.
After 10 days in Washington, Michael Ethan and I returned home exhausted and with a car twice as full as when we came! Thanks, Grandma!
I'm writing and illustrating a book for Chloe and Carol. When I stayed with Carol at the hospital we attended an Amputee meeting together. One of the women there gave Carol a teddy bear she had made for her to take home to Chloe. The teddy bear was this wonderfully fuzzy bear who's left arm was shorter than the other and who's legs were short underneath the removable long legs. A teddy bear with a body just like Chloe's Mamas. I thought this was such a brilliant gift. Carol and I have talked about her struggles with Chloe. She told me about the strain in their relationship after being at the hospital for so long and her heartache in not feeling the same connection they once shared as Mother and Daughter. I drove home from WA making notes about this 'book' I would make for them based on the gifted bear and all about about Chloe and Carol. Something they could sit and read together. I am pretty proud of what I have come up with so far although I can only imagine what my drawings could look like if I didn't have to sketch seated on my bed next to Michael each night.